13th September Day +3 Lennon woke up fine today just very tired and slept on and off all day.  Dr vora came to see him and was happy with his progress after the fit he had.

14th September Day +4 Lennon had high blood pressure at 4am this morning  & he complained of a headache to us.  We panicked we thought he'd would go into a fit again! They gave him something for his headache and it went straight away.  His bloodpressure settled down and Dr Vora said if he carries on like this he will be happy.

15th September Day +5 Lennon woke up at 3am complaining of a headache and was crying, his blood pressure was high again.  They gave him some calpol and he went back to sleep till after 6am.  He blood pressure was still high so they gave him something to bring it down.  He had loads to eat today but must start drinking more.  Dr Vora said the chemotheraphy should not give him a sore mouth now.  He has had his hydrocortisone reduced today as this could have been a factor with the high blood pressure.  Lennons hair has started to fall out today because of the chemotheraphy, we cellotaped some in his diary.

16th September Day +6 Lennon woke up at 6am today, he had a very good nights sleep.  He didn't need hydration today which he has been having over last few days.  He has Graft versus host disease round groin area, armpits and behind the knees.  They said they expect this after transplant but need to keep it under control as GVHD can be very dangerous.  He has a special steriod cream which is put onto the areas affected.  They said his white blood cells are 0.2 which means donor cells have started to graft, they are happy with him today.  His hair is falling out all the time now.

17th September Day +7 Lennon woke up at 7:30am today, he had really good nights sleep.  His white blood cells have gone up again today to 0.4 and they are happy.  GVHD has got worse today round groin area so they have given him a stronger cream to combat it.  Dr vora said if his count keeps going up he can go and stay at Pact House at the weekend.  We can't believe it so soon after transplant, we are keeping our fingers crossed.  Pact House is amazing, it is charity run and it gives parents and children a chance to feel normal again away from the hospital.  We would have to stay there at least a week as he can still get infections from people; He's still in the isolation stage so will have to be careful.  Pact House is empty at the moment so won't be as difficult to keep him isolated.  We will keep daily appointments to see Dr vora at the hospital and still go into his isolation room.