7th september Lennon woke up at 12am, 2:45am & 6:45am for a wee and he has lost abit of weight; That is good it means he is now not holding on to fluids.  He had his chemotheraphy today & he had to have something to make him poo as he's not going.  Oooooh Noooo!!!!!  He's watching Fire Man Sam, he is very quiet, looks abit down not as chatty as yesterday.

8th September Lennon has woke up happy, he's still on hydration till tommorrow & he has had his last chemotheraphy today.  He is in good spirits but alot more tired today.  We played bowling with him, he loved it and we also took him to the play room to play with the water activities there.

9th September Lennon woke up very tired this morning but he is still smiling and eating.  He had cycolsporin anti rejection drug today around 6:30am, this is for 6hours.  Dr vora has just been to see us he said Lennon is anemic but he won't need a blood transfusion because his Bone Marrow is coming tommorrow and that will sort it out.  The kind lady who's giving her marrow is having it taken out today, we are so excited but scared as well; She is the most amazing Lady to do this.  All we know about her is that she's 36yrs old and from America, we had no donor matches in England at all.  Lennon hasn't had a reaction to anti rejection drug today.

10th September Day Zero BONE MARROW TRANSPLANT DAY Lennon woke up fine just a bit tired, he's having second lot of anti rejection drug today.  Andy the nurse said there has been a delay at the airport due to bad weather so the courier will be here in the afternoon.  His Bone Marrow started at 12:45pm and ended at 8:06pm his blood pressure is up a bit and he complained of a headache.  He had some medication, he was sick twice so they gave him some fenigan and he went to sleep.   We had to slow down the speed of the Bone Marrow going in to Lennon because they thought that's what gave him his headache but the increased it again on the second bag, he had one litre in total. You watch the bone marrow going slowly into your sons body and just think how amazing that lady who gave him it, has been.

11th September Day +1 Lennon was fine when he woke up today at 5:40am then when he had his cyclosporin anti rejection drug.  He went vacant and went into a massive fit so they gave him some medication to stop the fit and he went to sleep.  He was taken for a CT scan because it could have been a bleed on the brain and could lead to a stroke.  Luckily it was clear, so the conclusion was Lennon had a bad reaction to cyclosporin! The cyclosoporin was stopped and they gave Campath as a one off dose to get rid of the T cells and it does the same job as what the cyclosporin would have done.  By the end of this terrifying day Lennon had settled and woke up fine.

12th September Day +2 Lennon woke up around 4 am this morning.  He was sick and it had blood in it, they sent a sample to the lab. They think its because he needed platelets.  He was sick again later but did not have much blood in it.  He has been put on nil by mouth.  Dr vora said he could be bleeding from the chemotheraphy which has stripped his stomach lining & gullet, he also had a bit of a sore mouth.  He had a chest x-ray today as he still sometimes has to be on oxygen as stats go below what they should be.  The x-ray came back clear, all in all he had a good day today.