Updates

site_updated

We have updated Lennon's Story with a part two. This has more of what he went through and also has some GOOD NEWS. Click on the picture above to view them

We have updated the pictures of Joe with some new music. Click on the picture above to view them.

We have updated the uploaded the pictures from the ALD Life weekend London get-together in May 2009. Click on the picture above to see all the photos.

Joe's cousin Gemma has written a story about why Joe is her idol, this can be found under Joe's Family section or just click on her picture above.

We have updated Lennon's page with his mum & dads story about his transplant. We have also included a couple of photos when he had his bone marrow transplant. This can also be found under Joe's Family or by clicking on his picture above.

We have also updated the guestbook and used the one from the old website and imported the comments we have recived since. It is easier to use and is a lot quicker, please take time to leave us a message, we appreciate all comments

News from Space

08/03/2010, New Rocket Engine Could Reach... >>

08/03/2010, Warp Speed Will Kill You... >>

10/09/2009, NASA and ATK Successfully... >>

04/09/2009, Orion Launch Abort Team... >>

Date & Time

No Of Visitors

	Today	4
	Yesterday	15
	This week	33
	This month	146
	All	15417

Main Menu

What is ALD?

Adrenoleukodystrophy (ALD) is a rare, inherited metabolic disorder. In this disorder, the fatty covering (myelin sheath) of nerve fibres in the brain is lost, and the adrenal gland degenerates, usually leading to progressive neurological disability and death. A good portrayal of the effects of ALD on both the victim and family is the film “Lorenzo’s Oil”. It accurately describes the deterioration of a young boy with the disorder and resultant problems. The film does intimate that a cure (Lorenzo’s Oil) was found. Unfortunately this is not the case for those already with symptoms, although the oil is now a recognised and hopefully preventative treatment for all boys under 6 with the gene who are not presenting symptoms. It is now also being tested as a preventative treatment for men with adrenomyeloneuropathy (AMN) and females with symptoms.

Description thanks to ALD LIFE

Web address: www.aldlife.org

--------------------------